PREFER

Patients in PREFER: Partners and advisors

Our patient partners play a central role, making sure the patient perspective is present at all levels in the PREFER project.

The PREFER consortium includes four patient organisation: the European Cancer Patients Coalition (ECPC), Muscular Dystrophy UK (MDUK), European Patients Forum (EPF), and International Alliance of Patients’ Organizations (IAPO). Together they form the PREFER Patient Advisory Group, coordinated by ECPC.

Patient Advisory Group members are directly involved in activities within all work packages of PREFER, sharing common expectations and ensuring that the methodologies identified correspond to the patient views, experiences and preferences. We also have a number of individual patients with rheumatoid arthritis on board through the clinical research partners at the University of Birmingham.

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Patient advisory group composition

Coordinator: ECPC

  • European Cancer Patients Coallition (ECPC)
  • Muscular Dystrophy UK (MDUK)
  • European Patients Forum (EPF)
  • International Alliance of Patients’ Organizations (IAPO)