Publications in scientific journals

  • Monzani, Dario; Petrocchi, Serena; Oliveri, Serena; Veldwijk, Jorien et al.

    Patient Preferences for Lung Cancer Treatments: A Study Protocol for a Preference Survey Using Discrete Choice Experiment and Swing Weighting

    Part of Frontiers in Medicine, 2021.

    Open access
  • Janssens, Rosanne; Arnou, Reinhard; Schoefs, Elise; Petrocchi, Serena et al.

    Key Determinants of Health-Related Quality of Life Among Advanced Lung Cancer Patients: A Qualitative Study in Belgium and Italy

    Part of Frontiers in Pharmacology, 2021.

    Open access
  • van Overbeeke, Eline; Hauber, Brett; Michelsen, Sissel; Peerlinck, Kathelijne et al.

    Patient preferences for gene therapy in haemophilia: Results from the PAVING threshold technique survey

    Part of Haemophilia, 2021.

    Open access
  • Russo, Selena; Monzani, Dario; Pinto, Cathy Anne; Vergani, Laura et al.

    Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies

    Part of Patient Preference and Adherence, p. 1331-1345, 2021.

    Open access
  • Janssens, Rosanne; Lang, Tamika; Vallejo, Anna; Galinsky, Jayne et al.

    Patient Preferences for Multiple Myeloma Treatments: A Multinational Qualitative Study

    Part of Frontiers in Medicine, 2021.

    Open access
  • Falahee, Marie; Simons, Gwenda; DiSantostefano, Rachael; Valor Méndez, Larissa et al.

    Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project

    Part of BMJ Open, 2021.

    Open access
  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Baecklund, Eva et al.

    Does being exposed to an educational tool influence patient preferences? The influence of an educational tool on patient preferences assessed by a discrete choice experiment.

    Part of Patient Education and Counseling, 2021.

  • Smith, Ian P.; DiSantostefano, Rachael L.; de Bekker-Grob, Esther W.; Levitan, Bennet et al.

    Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project

    Part of Patient, 2021.

    Open access
  • van Overbeeke, Eline; Hauber, Brett; Michelsen, Sissel; Goldman, Michel et al.

    Patient Preferences to Assess Value IN Gene Therapies: Protocol Development for the PAVING Study in Hemophilia

    Part of Frontiers in Medicine, 2021.

    Open access
  • Jimenez-Moreno, A. Cecilia; van Overbeeke, Eline; Pinto, Cathy Anne; Smith, Ian et al.

    Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study

    Part of Patient, 2021.

    Open access
  • Petrocchi, Serena; Janssens, Rosanne; Oliveri, Serena; Arnou, Reinhard et al.

    What Matters Most to Lung Cancer Patients? A Qualitative Study in Italy and Belgium to Investigate Patient Preferences

    Part of Frontiers in Pharmacology, 2021.

    Open access
  • Durosini, Ilaria; Janssens, Rosanne; Arnou, Reinhard; Veldwijk, Jorien et al.

    Patient Preferences for Lung Cancer Treatment: A Qualitative Study Protocol Among Advanced Lung Cancer Patients

    Part of Frontiers In Public Health, 2021.

    Open access
  • Jimenez-Moreno, Aura Cecilia; Pinto, Cathy Anne; Levitan, Bennett; Whichello, Chiara et al.

    A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project [version 1; peer review: 1 approved]

    Part of Wellcome Open Research, 2020.

    Open access
  • Whichello, Chiara; Schölin Bywall, Karin; Mauer, Jonathan; Watt, Stephen et al.

    An overview of critical decision-points in the medical product lifecycle: Where to include patient preference information in the decision-making process?

    Part of Health Policy, p. 1325-1332, 2020.

    Open access
  • Schölin Bywall, Karin; Kihlbom, Ulrik; Hansson, Mats; Falahee, Marie et al.

    Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients

    Part of Arthritis Research & Therapy, 2020.

    Open access
  • van Overbeeke, Eline; Michelsen, Sissel; Hauber, Brett; Peerlinck, Kathelijne et al.

    Patient perspectives regarding gene therapy in haemophilia: Interviews from the PAVING study

    Part of Haemophilia, p. 1-8, 2020.

    Open access
  • van Overbeeke, Eline; Forrester, Valérie; Simoens, Steven; Huys, Isabelle

    Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives

    Part of Patient, 2020.

    Open access
  • Whichello, Chiara; Levitan, Bennet; Juhaeri, Juhaeri; Patadia, Vaishali et al.

    Appraising patient preference methods for decision-making in the medical product lifecycle: an empirical comparison

    Part of BMC Medical Informatics and Decision Making, 2020.

    Open access
  • van Overbeeke, Eline; Vanbinst, Inès; Jimenez-Moreno, Aura Cecilia; Huys, Isabelle

    Patient Centricity in Patient Preference Studies: The Patient Perspective

    Part of Frontiers in Medicine, p. 1-10, 2020.

    Open access
  • Russo, Selena; Jongerius, Chiara; Faccio, Flavia; Pizzoli, Silvia F.M. et al.

    Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies

    Part of Value in Health, p. 491-501, 2019.

    Open access
  • van Overbeeke, Eline; Janssens, Rosanne; Whichello, Chiara; Schölin Bywall, Karin et al.

    Design, Conduct, and Use of Patient Preference Studies in the Medical Product Life Cycle: A Multi-Method Study

    Part of Frontiers in Pharmacology, 2019.

    Open access
  • Janssens, Rosanne; Huys, Isabelle; van Overbeeke, Eline; Whichello, Chiara et al.

    Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review

    Part of BMC Medical Informatics and Decision Making, 2019.

    Open access
  • Whichello, Chiara; van Overbeeke, Eline; Janssens, Rosanne; Schölin Bywall, Karin et al.

    Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US

    Part of Frontiers in Pharmacology, 2019.

    Open access
  • Janssens, Rosanne; Russo, Selena; van Overbeeke, Eline; Whichello, Chiara et al.

    Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA

    Part of Patient, p. 513-526, 2019.

    Open access
  • Soekhai, Vikas; Whichello, Chiara; Levitan, Bennet; Veldwijk, Jorien et al.

    Methods for exploring and eliciting patient preferences in the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2019.

    Open access
  • van Overbeeke, Eline; Whichello, Chiara; Janssens, Rosanne; Veldwijk, Jorien et al.

    Factors and situations influencing the value of patient preference studies along the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2018.

    Open access
  • de Bekker-Grob, Esther; Berlin, Conny; Levitan, Bennet; Raza, Karim et al.

    Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project

    Part of Patient, p. 263-266, 2017.

    Open access

Abstracts from PREFER

  • de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett

    Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

    Part of ISPOR Value & Outcomes Spotlight, p. 19-21, 2018.

    Open access
  • Janssens, R.; Huys, I; van Overbeeke, E.; Whichello, C. et al.

    Stakeholder Perspectives On The Integration Of Patient Preferences In The Medical Product Life Cycle: A Multimethod Approach

    Part of Value in Health, p. A689-A689, 2017.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik

    Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study

    Part of Value in Health, p. A540-A540, 2017.

  • Soekhai, V; Whichello, C.; Levitan, B.; Veldwijk, Jorien et al.

    Compendium Of Methods For Measuring Patient Preferences In Medical Treatment

    Part of Value in Health, p. A684-A685, 2017.

  • van Overbeeke, E.; Whichello, C.; Janssens, R.; de Bekker-Grob, E. et al.

    Conditions And Contextual Factors That Influence The Utility And Application Of Patient Preference Studies: A Study Combining Literature And Focus Groups

    Part of Value in Health, p. A690-A691, 2017.

Want a summary of what we have published?

Abstract book publications

PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. We include patient stakeholders at every level of the project. The end-result will be recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies. 

Want to know what we have published so far? In this pdf booklet, you will find a list of our publications with abstracts and links to full text.

The booklet was updated on September 23, 2021..

Download publications booklet

Last modified: 2021-10-07