Publications from PREFER

  • Whichello, Chiara; van Overbeeke, Eline; Janssens, Rosanne; Schölin Bywall, Karin et al.

    Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US

    Part of Frontiers in Pharmacology, 2019.

    Open access
  • Janssens, Rosanne; Huys, Isabelle; van Overbeeke, Eline; Whichello, Chiara et al.

    Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review

    Part of BMC Medical Informatics and Decision Making, 2019.

    Open access
  • Janssens, Rosanne; Russo, Selena; van Overbeeke, Eline; Whichello, Chiara et al.

    Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA

    Part of Patient, p. 513-526, 2019.

    Open access
  • Soekhai, Vikas; Whichello, Chiara; Levitan, Bennet; Veldwijk, Jorien et al.

    Methods for exploring and eliciting patient preferences in the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2019.

    Open access
  • Russo, Selena; Jongerius, Chiara; Faccio, Flavia; Pizzoli, Silvia F.M. et al.

    Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies

    Part of Value in Health, p. 491-501, 2019.

    Open access
  • de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett

    Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

    Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.

    Open access
  • van Overbeeke, Eline; Whichello, Chiara; Janssens, Rosanne; Veldwijk, Jorien et al.

    Factors and situations influencing the value of patient preference studies along the medical product lifecycle: a literature review

    Part of Drug Discovery Today, 2018.

    Open access
  • Janssens, R.; Huys, I; van Overbeeke, E.; Whichello, C. et al.

    Stakeholder Perspectives On The Integration Of Patient Preferences In The Medical Product Life Cycle: A Multimethod Approach

    Part of Value in Health, p. A689-A689, 2017.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik

    Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study

    Part of Value in Health, p. A540-A540, 2017.

  • Soekhai, V; Whichello, C.; Levitan, B.; Veldwijk, Jorien et al.

    Compendium Of Methods For Measuring Patient Preferences In Medical Treatment

    Part of Value in Health, p. A684-A685, 2017.

  • van Overbeeke, E.; Whichello, C.; Janssens, R.; de Bekker-Grob, E. et al.

    Conditions And Contextual Factors That Influence The Utility And Application Of Patient Preference Studies: A Study Combining Literature And Focus Groups

    Part of Value in Health, p. A690-A691, 2017.

  • de Bekker-Grob, Esther; Berlin, Conny; Levitan, Bennet; Raza, Karim et al.

    Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project

    Part of Patient, p. 263-266, 2017.

    Open access

Want a summary of what we have published?

Abstract book publications

PREFER looks at how and when it is best to perform and include patient preferences in decision making during the medical product life cycle. We include patient stakeholders at every level of the project. The end-result will be recommendations to support development of guidelines for industry, Regulatory Authorities and HTA bodies. 

Want to know what we have published so far? In this pdf booklet, you will find a list of our publications with abstracts and links to full text.

The booklet was updated on October 16 2019.

Download pdf

Authorship in PREFER

Authorship of publications coming out of PREFER reflects the collaborative nature of our work. When it is possible, researchers from public and private partners write and publish together with stakeholders within and outside the project.

We follow the authorship recommendations of the International Committee of Medical Journal Editors (ICMJE), also known as the Vancouver guidelines. This means that authorship is based on:

  • Substantial contributions to the conception or design of the work; or the acquisition, analysis, or interpretation of data for the work; AND
  • Drafting the work or revising it critically for important intellectual content; AND
  • Final approval of the version to be published; AND
  • Agreement to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved

Data management in PREFER

PREFER has developed an initial data management plan to guide partners and provide oversight of general data management. This plan will be updated several times during the course of the project.

If you have questions regarding data management in PREFER, contact Monika Brand (Actelion), Eline van Overbeeke (KU Leuven) or Isabelle Huys (KU Leuven) through

Download DMP