Contact the patient advisory group
The PREFER patient advisory group consists of four patient organisation: the European Cancer Patients Coallition (ECPC), who coordinates the work, Muscular Dystrophy UK (MDUK), European Patients Forum (EPF), and International Alliance of Patients’ Organizations (IAPO).
If you wish to get in contact with the patient advisory group, please contact Isabelle Manneh-Vangramberen, firstname.lastname@example.org.
Antonella Cardone, ECPC
Antonella Cardone (ECPC) is the Director of the European Cancer Patient Coalition, the largest cancer patient umbrella organization in Europe with over 450 members from 48 countries. She has 25 years of experience working for non-profits in health, social and employment sectors. Prior to ECPC, Antonella Cardone was the Executive Director of the Fit for Work Global Alliance, a multi-stakeholder coalition championing change in health and work policy. She has previously served as the Director of the Global Smoke-free Partnership of the American Cancer Society, leading a movement of over 100 members to coordinate the development of smoke-free laws in 40 countries. She holds a Master’s in Science and one in Business Administration. She currently represents ECPC on the Board of Pancreatic Cancer Europe, in which she is vice-chair, and she is also Board Member of All.Can, an international multi-stakeholder not-for-profit organisation working to improve the efficiency of cancer care.
Charis Chirvalaki, ECPC
Charis Chirvalaki (ECPC) works to build bridges between policy and research project management, support the collaboration with research institutions, EU regulatory authorities, policymakers, industry and patient organizations and help the European Cancer Patient Coalition put cancer at the frontline of the European agenda. She has ten years of experience in European and International projects and has worked with a wide range of key players and stakeholders, including European and governmental institutions, academia, health services, local authorities. Charis Chirvalaki graduated from the Chemistry Department at University of Crete, Greece. She holds a Master’s degree in Public Health and Healthcare Management specialised in Epidemiology and a PhD from Medical School, University of Crete, Greece.
Kathi Apostolidis, ECPC
Kathi Apostolidis (ECPC) provides input to PREFER methodology work. She is a Board Member of ECPC-European Cancer Patient Coalition and the President of the Executive Committee of ELL.O.K., the Hellenic Cancer Federation in Greece. Kathi Apostolidis is a Public Affairs Consultant with a very broad and diversified experience in regulatory and public affairs, diplomacy, strategy, marketing and communications with international companies and public service. Jointly with the President, she is responsible for strategy, strategic alliances, relations with the European Commission and other EU and national high level cancer stakeholders.
Juan José Ventura, ECPC
Juan José Ventura (ECPC) is a senior health and research projects manager. He coordinates all ECPC health and research projects and keeps tract of the implementation of ongoing projects where ECPC is involved. He organises ECPC research meetings and workshops for members. Juan José Ventura has a PhD in pharmacy from the University Complutense of Madrid. He has done research and taught at several international universities.His research focus has been to find target cells and molecular biomarkers that could be used for diagnosis and therapy of several cancers, such as cancer of the liver, colon and lung. Within the PREFER project, he coordinates and manages ECPC´s activities and has an active role as a researcher.
Valentina Strammielloas, EPF
Valentina Strammielloas (EPF) is part of the PREFER patient stakeholder advisory group.
Ziede Burage, IAPO
Ziede Burage (IAPO) provides patient input to PREFER’s methodology and recommendations. She also contributes toward the IMI-GetReal Initiative project. Ziede is IAPO’s Policy Manager and is leading policy development and research activities to ensure patients' voice is better heard in health policy making at global and regional levels. Before joining IAPO, Ziede worked at several international health NGOs and, most recently, at Cancer Research UK on policy development and research grants management. Ziede holds a Master in Human Rights from the City University London.
Jenny Sharpe, MDUK
Jenny Sharpe (MDUK) leads the patient input in the clinical case studies. She also gives input to PREFER communications, methodology and recommendations. Jenny is MDUK’s Research Communications Officer and is primarily responsible for translating research findings into a language that patients can understand. This involves engaging with a range of people, including scientists, industry representatives, clinicians, and individuals and families affected by neuromuscular conditions. Prior to joining MDUK, she completed a PhD in mitochondrial biology at University College London.